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CureHSPB8
CureHSPB8
About
For Families
Introduction
Join the Registry
Practical Information
Get Involved
Patient Stories
External Resources
A Guide to Genetic Testing
For Clinicians
Introduction
Flowchart for Clinicians
When to Suspect
Genetic Testing
Disease Management
Histological Findings
Video about HSPB8
Disease Classification
Research
Introduction
Clinical Presentation
Histology Findings
HSPB8 Protein
Disease Pathology
Research Toolkit
Library
Academic Groups
News & Events
News
HSPB8 Videos
Contact
DONATE
About
Folder: For Families
Back
Introduction
Join the Registry
Practical Information
Get Involved
Patient Stories
External Resources
A Guide to Genetic Testing
Folder: For Clinicians
Back
Introduction
Flowchart for Clinicians
When to Suspect
Genetic Testing
Disease Management
Histological Findings
Video about HSPB8
Disease Classification
Folder: Research
Back
Introduction
Clinical Presentation
Histology Findings
HSPB8 Protein
Disease Pathology
Research Toolkit
Library
Academic Groups
Folder: News & Events
Back
News
HSPB8 Videos
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DONATE
A year it all started – reflecting on 2024 at Cure HSPB8 
Ania Kordala 12/19/24 Ania Kordala 12/19/24

A year it all started – reflecting on 2024 at Cure HSPB8 

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Unlocking Hope for the Ultra-Rare Conference in Warsaw
Ania Kordala 9/9/24 Ania Kordala 9/9/24

Unlocking Hope for the Ultra-Rare Conference in Warsaw

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Cure HSPB8 and Everlum Bio Announce Strategic Collaboration to Accelerate Research 
Julia Mielcarz 6/25/24 Julia Mielcarz 6/25/24

Cure HSPB8 and Everlum Bio Announce Strategic Collaboration to Accelerate Research 

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Cure HSPB8 Receives Generous Funding from VoLo Foundation: A Boost for Research and Support 
Mat Angulo 5/16/24 Mat Angulo 5/16/24

Cure HSPB8 Receives Generous Funding from VoLo Foundation: A Boost for Research and Support 

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Cure HSPB8 Joins Global Genes Alliance: Strengthening the Fight Against Rare Diseases 
Mat Angulo 5/15/24 Mat Angulo 5/15/24

Cure HSPB8 Joins Global Genes Alliance: Strengthening the Fight Against Rare Diseases 

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Establishing Cure HSPB8: A New Hope for Those Affected by HSPB8 Myopathy 
Mat Angulo 4/2/24 Mat Angulo 4/2/24

Establishing Cure HSPB8: A New Hope for Those Affected by HSPB8 Myopathy 

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Home · About · Contact

Families

Introduction

Join the Registry

Practical Information

Get Involved

Patient Stories

External Resources

A Guide to Genetic Testing

For Clinicians

Introduction

Flowchart for Clinicians

When to Suspect

Genetic Testing

Disease Management

Histological Findings

Video about HSPB8

Disease Classification

Research

Introduction

Clinical Presentation

Histological Findings

HSBP8 Protein

Disease Pathology

Research Toolkit

Library

Academic Groups

News&Events

News

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Cure HSPB8 is a Project of Social and Environmental Entrepreneurs (SEE) a non-profit public charity exempt from federal income tax under Section 501(c)(3) of the Internal Revenue Code, which provides non-profit status. If you are donating by credit card, please note that Social and Environmental Entrepreneurs, or a variation of SEE, will show up on your credit card statement. Your donation is fully tax deductible.

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