VoLo Foundation Renews Support for Cure HSPB8

We’re thrilled to announce that Cure HSPB8 has once again received a generous donation from the VoLo Foundation. Their continued support is a powerful vote of confidence in our mission to improve the lives of people affected by HSPB8 Myopathy.

A Shared Commitment

VoLo Foundation backs science-driven initiatives that create real-world impact in health, education, and climate. Their values align closely with ours—and this renewed funding strengthens a partnership rooted in hope, science, and progress.

What This Means

Thanks to VoLo Foundation, we can:

• Advance research to accelerate drug discovery and development 

• Support families with better resources and connection 

• Raise awareness of HSPB8 Myopathy worldwide 

• Grow our community of researchers, patients, and advocates 

Grateful and Energized

We are incredibly grateful to the VoLo Foundation team for believing in our work—not just once, but again. This support helps us push forward with greater momentum, bringing us closer to better treatments and, one day, a cure.

Together, we’re turning rare into recognized—and progress into possibility.